CPET Test for disability?
Curious if anyone on here has got a cardio pulmonary exercise test done and how intense you may have found it and if it helped you with disability? Thank You
View ArticleAnyone know any orgs that can help me? (Not AMMES)
That specific org has never been able to help me with funds and always just said that there was an obscure federal benefit that I could apply for and maybe get in a few years, so they felt funding...
View ArticleMedicare/Medicaid Florida for SSDI recepients
Hello, I was curious if i am receiving 900/month in ssdi. About 148 of which medicaid in California pays for traditional Medicare would moving to Florida lower the monthly ssdi amount? I'm well above...
View ArticleExperiences with Disability support (Australia)
Hi all, Just wondering what others experience has been with applying for the disability support pension in Australia? Are there particular doctors that might help or certain evidence that I need? I've...
View ArticleFSA (Flexible Spending Accounts) Spending for Supplements (US)
Has anyone use their FSA of the year for CFS /ME supplement. It seems like it might be possible if you get a letter from a doctor.
View ArticlePIP and ESA: what IS considered good medical information? (UK)
Hi guys! I'm currently claiming Universal Credit (yay...). They have sent me a "Limited capability for work" questionnaire to fill out because I have been sending them endless medical certificates to...
View ArticleSocial Security Disability (SSDI) lawyer recommendation? (US)
I am looking for recommendations for an SSDI lawyer. My case is currently in Maryland but I don't need someone local.
View ArticleWorkwell is now offering EEG brain scans pre/post CPET to assess cognitive...
Workwell is now offering EEG brain scans pre/post CPET to assess cognitive function in response to exertion. Workwell said: WHAT IS EEG?â EEG (electroencephalogram) provides a noninvasive objective...
View ArticleFinancial Planning and CFS
Hi PR family, I am looking into hiring a financial planner and meeting with a few because I don't really have the energy to manage what money I do have in my retirement fund to make it work the best...
View ArticleWork Accommodations Resources
Hi all, I was wondering, for those of you that got diagnosed by a knowledgeable ME/CFS doctor, did he/she provide you with a document for the HR department at your workplace? My doctor wants to write...
View ArticleSpecific documents on CFS and fibromyalgia from a US agency (Job...
Many people with Myalgic Encephalomyelitis/Chronic Fatigue Syndrome are too ill to work. But there are some in some professions who may be able to with the right supports. This 2008 US document gives...
View ArticleCan anyone recommend a qualified ME-aware disability lawyer in Portland, OR...
This is RWP, PWR's husband (borrowing her account!) I recevied SSD & SSI back in 1990, using a local lawyer (not ME-focused, but competent). Not sure if he's still in practice, but since I may have...
View ArticleCost of Living Crisis
How is everyone coping with the rising bills? I have arthritis too and also live 'up North' where the temps are usually colder. (most often between -10 and 10 degrees for most of winter) I am more...
View ArticleFate, faith and suffering {MECFS}
Long article on living with MECFSâwell written. https://quillette.com/2022/09/05/fate-faith-and-suffering/ https://twitter.com/i/web/status/1567101525838942208
View Articleneuropsych testing?
Does anyone know who is doing neuropsych testing for ME/CFS disability these days?
View Article--- Article Not Found! ---
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View ArticleHealth Insurance Coverage of Labs and Meds
Hi, I have Aetna insurance (PPO). For various reasons, I'm not on medicare. The claims I have submitted for my lab work and medications have been covered; I think Aetna may not realize that I am...
View ArticleConcerns about Work Accommodation in US
Not sure how to word my questions, and I know I have more than what I wrote here...so please bear with me. Background: I am just now on Long Term Disability (LTD) through my employer paid plan that...
View ArticleWon PIP Appeal both Standard Rate
I attended on Tuesday fully expecting to be turned down especially after being grilled by the medical expert. It has taken five years to get to Appeal. Am 73 now. In shock but in a nice way lol
View ArticleHousing or Section 8, etc in the USA
Is anyone in the US on SSDI and on Section 8 housing? I am really sick since Covid, CFS, Sjogrens and I know at some point I will have to go into Government housing. I want to get a head start on how...
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